Love is a Song that Never Ends
Click to play
“Love is a Song that Never Ends”
Music by Frank Churchill
Lyrics by Larry Morey
Love is a song that never ends
Life may be swift and fleeting
Hope may die yet love’s beautiful music
Comes each day like the dawn.
Love is a song that never ends
One simple theme repeating
Like the voice of a heavenly choir
Love’s sweet music flows on.
This is a song with words that I found comforting as a caregiver and now, in grieving and sorting through memories.
There were days that were hard, and neither Ben nor I were at our best with each other. I still look back on those days and feel sad. But, it’s difficult beyond words to need a caregiver, and it’s also difficult to be a caregiver. We were both overwhelmed by the whole situation- the ALS and what it was doing to him, his ever-increasing need for care, the confines of a small apartment, and our relationship that felt like it was shifting from one of husband and wife to one of patient and caregiver. We had so much love, but it was at times overshadowed by sadness, fear, resentment and guilt. It was an emotionally trying situation for both of us.
As Ben’s physical health diminished, it was hard for both of us to feel hopeful, or cheerful, or “normal.” ALS is unpredictable in its progression. We never knew what difficulty Ben would face. Less use of legs? hands? arms? speech? swallowing? Every day brought the possibility of a new or worsening condition. Nothing was going to get easier, though we hoped it would take a long time for things to get worse. We did try to adjust to the difficulties with humor, too. Ben was very entertained by all of the concoctions I made in the Cuisinart to accommodate his taste and need for finely pureed food. I became quite the creative chef!
It was often while reminiscing about our trips to Walt Disney World- such joyful and silly times- that we would be reminded of some of the best and most carefree parts of our 16 years together. Good friends and family to email or vent to, keeping a journal, and occasional therapy also helped!
Hope and love got us through very difficult and ugly times. Now, there is the hope that he has found peace and is free of the constraints of the disease, in a place where he can walk or run, eat, talk and sing. And love’s sweet music will always flow on in the form of beautiful memories.
I welcome your comments. If you do not see the Comment form at the bottom of this post, click on the title of the post, then scroll to the bottom of the post and it should appear. Thanks.
August 14, 2016 @ 10:46 am
You have the special gift of being able to express in words the angst of so many care-givers: the constant conflict of feelings. It is so wonderful that you can share this….and somewhat ease their pain and let them know “it is all right”.
August 14, 2016 @ 8:14 pm
Thank you so much for your kind words, Maureen.
I hope that it is helpful.
August 14, 2016 @ 12:25 pm
Your words are also comforting, Abby, thank you!
And thank you for helping me to keep hoping and believing that a light at the end of the tunnel…is really there!
August 14, 2016 @ 8:12 pm
I’m so glad to be able to provide some comfort to you. I hope you are able to see the light very soon!
Bambi and Thumper – A Special Relationship – Pixie Dust for Caregivers
April 16, 2017 @ 2:26 pm
[…] from Walt Disney Pictures Bambi. I’ve always loved Bambi, and have written about the song Love is a Song that Never Ends and how it resonated with me in caregiving and in grief. I recently watched “Bambi” again, and […]
Bambi’s Story Rings True After 75 Years! – Pixie Dust for Caregivers
August 13, 2017 @ 1:58 pm
[…] of my very first posts was a reflection on the lyrics to “Love Is a Song That Never Ends.” Click here for that post. I frequently refer to that song. Here is the song clip to accompany the […]