I always loved Valentine’s Day. I have hand-made Valentine cards for as long as I can remember. My great-aunts and great-uncles, and of course my parents, aunt and grandma, saved all of them. As they’ve passed on, their collections of the cards I made for them made their way back to me so I would know that they were kept and treasured. Ben had his own collection, which I now revisit from time to time and on days like this. I see them as testaments to the love we all had for each other. But, I miss all of these people.
Now, Valentine’s Day is bittersweet but I still love the whole idea of Valentine’s Day. As I posted yesterday (click here for that post), my dad passed away the day before Valentine’s Day in 2014. I spent Valentine’s Day that year making his funeral arrangements. My dad’s birthday is the day after Valentine’s Day.
With Ben, our Valentine’s Day celebrations were often sweet and simple. He always knew that after I put him to bed, I would make a card and decorate the apartment, and he looked forward to his Valentine’s Day surprise. It added some whimsy to his homebound life.
I also remember the simple and sweet Valentine’s Days spent with Ben where we danced in the living room. Ben thought that he had to take me to a fancy restaurant, but he learned that I really preferred cozy celebrations at home. Dancing was an important part of our relationship and I miss that, too. I was unexpectedly reminded of those days today during class. I was showing my class the film Under The Same Moon. It’s a Spanish film which touches on vocabulary the students have learned as well as issues of immigration. It’s a beautiful little film and the students always love it. I forgot about a scene where two people dance and start to fall in love. It immediately took me back to my living room, where Ben and I always danced and I tried to learn how to dance a little bit of salsa. I thought about the song One Dance(click here to read about it) and how much it meant when Ben was in the hospital. I felt the tears coming and did not want to cry in class. At least the lights were off! I busied myself at my desk to avoid the scene- I’ve seen the film so many times I know many of the lines! Unfortunately, I was shaken for the rest of the day. I tried to cheer myself up by making my traditional rounds in class and the hallways with chocolate for my current and former students, as well as those I didn’t know and for my colleagues. Valentine’s Day is and should be a happy day of building community in the school and I love that. Still, I was emotional and on shaky ground. It’s those unanticipated jolts of grief that are the most unnerving.
Another Valentine’s Day tradition that I maintain is to visit my aunt Eleanor, who has Alzheimer’s Disease and is in a nursing home. She has declined to the point of being non-responsive and I was nervous about how the visit would go. When I arrived, she stared at me, but almost through me, without recognition or reaction. At a few points, she seemed to understand what I said, but she is nonverbal. She has no real quality of life anymore. It’s devastating to see. I sat quietly beside her for a while, placed the Valentine card with Tinker Bell’s picture and kissed her good bye. It broke my heart. I realize that I have been grieving the loss of our relationship for quite some time.
My aunt Eleanor with the only dog she ever loved, our Standard Schnauzer, Dulcie.
Despite the sadness of today, Valentine’s Day seems an appropriate day to spotlight with love these people whom I miss and treasured so much.
(L-R) Great-uncle Louie, Great-aunt “Tanta” Rosie, Great-Aunt Lillian, Grandma Dora, Great-Uncle Larry. Mid-1980s. I adored them all.
My mom and our Standard Schnauzer, Dulcie. Miss them both!
My dad, in one of his favorite photos, with our Miniature Schnauzer, Windy, at my Cornell graduation. Daddy liked to look serious, but he was quite the joker.
(L-R) Great-Uncle Davis, cousin Garry, who, at age 94, passed away just one month before Ben), and Great-Aunt “Tanta” Rosie.
My silly Ben with his buddy, Buzz.
Life has changed without all of these people, and although I lost many people that I loved and who loved me so much, I am fortunate and grateful to have had them in my life. I am also grateful to still be surrounded by much love. Crafts projects give me peace and inspiration, and I realized how important making Valentine cards was to me once I lost those closest to me. It was a way of showing and feeling so much love. For my older relatives, my cards were the only fun mail they received and I was the person of my generation who always reached out to them. I decided to continue to tap my inner child with my card-making tradition, giving them to special people in my life.
The holiday is different now, and, honestly, not as happy, but it does give me joy to show my love and appreciation for special people, in my craftsy way, and to share a special tradition that keeps Ben, my parents, grandma and great-aunts and great-uncles close. And, who knows? Cinderella’s Fairy Godmother said, “Even miracles take a little time,” so maybe a romantic Valentine’s Day will again happen for me.
I wish everyone a Happy Valentine’s Day filled with love and friendship, and a sprinkling of pixie dust!
Tinker Bell’s first Valentine card! Each card is a little different.
Today marks 6 years since my dad, Jacob, left this world. People might think this strange, but I still think about him every single day, remembering his humor, his advice, his kindness and his history lessons. I think about how upset he would be about the state of our country and its leadership, or lack thereof. He was a proud Marine, and a real patriot. He also loved history, particularly WW2, and he would definitely be reminding me that history does indeed repeat itself. As much as I miss him, I am relieved that he is not aggravating himself. There are so many times that I want to call my dad, to share a story, ask for his advice, hear him laugh. I still talk to him. Somehow, I know that he hears me, because sometimes he guides me to the answers.
February is probably my least favorite month because it is filled with lousy anniversaries. In particular, this is a difficult week because my dad died just two days before his birthday. I can’t help but relive the time he spent at the hospital and at the VA Hospice. I spent every day with him in the hospital and then commuted out to Long Island to visit him every day at the VA Hospice. It still bothers me that there was a terrible storm the day he died and all means of transportation were stopped so I could not get to him on that day. The nurse did put the phone to his ear, and although he was no conscious, I know that he heard me tell him that I loved him, that he was the best father and that it was okay if he was ready to go. I remember people from the staff telling me that I was my dad’s world. I did know that, and I am grateful that we took every opportunity to let each other know how much we loved each other way before he became ill. There were no things left unsaid. I am grateful to have had such a close relationship with him. I suppose the sharp pangs of grief and waves of sadness that permeate these days are testament to the love we had for each other. I like to think about it that way.
Added to this year’s sadness is that I lost my sweet cat, Disney, just one year ago, on February 7. I remember talking to her veterinarian, when it became clear that it was time for her to go and join Ben and my dad, that it might as well happen in February since it was already a terribly emotional month.
On the night that he died, I wrote notes about my relationship with my dad for the Rabbi to present at his funeral. It has become my tradition to revisit those notes on this date and I like to share them to let people know a little bit about him. Daddy would have said that he did not want any attention, but he deserves it.
My dad was a one-of-a-kind. He was so funny, so kind, so generous, but he liked you to think he was Archie Bunker. I don’t think he ever knew or believed how loved he was.
He was such a proud Marine. He wore his USMC cap so proudly and loved to run into other veterans and share stories. But I was his Private Benjamin. The first time I drove him to the VA out in Northport he just shook his head when I clapped and waved as the guard at the gate saluted us when I flashed Daddy’s VA card. Daddy saluted, shook his head and laughed. Although he was not an observant Jew, his Marine Corps experience, where he was one of 3 Jews, gave him a sense of pride in his religion and he did not tolerate any discrimination, gaining the nickname of “that crazy Jew” because he would fight anyone who even looked like they were going to say anything derogatory. He trained down south during the days of segregation, and he remembered with sadness and contempt the way he was not allowed to sit on the bus with his African American USMC buddies and how disgusted he was by those attitudes because it was so different than up here.
He lived and breathed dogs but really loved all animals. When I was a little girl we used to read the Dog Breed book all the time. I knew every breed and I used to say that I couldn’t be Daddy’s daughter if I could not identify every kind of dog! But, he took great pride in his dogs and Schnauzers were our breed. The whole neighborhood knew my dad as Dulcie’s dad. And we all lived by the motto of “love me love my dog.” He was delighted when a group of kids told their sister, who was afraid of Dulcie and making a bit of a scene, to “go inside if you don’t want to play with Dulcie” instead of telling Dulcie to go away. When he was selling our house, a real estate agent brashly told him to put the dog outside. He told her she could stand outside but the dog lived there. She left and never came back. My dad was fine with that! He used to leave messages for my cat when he knew she was alone and let her know that it was a grave injustice that her mommy left her alone.
He was so proud of me and excited that in 2010 I finally was able to launch my dream pet souvenir business and he loved helping me with ideas and business advice. Just last weekend Ben put pictures from a recent dog event I was asked to participate in on his iPad so I could show them to my dad. He loved to look at the pictures and was interested so in my life that he even knew my doggie friends by name.
He had such a good sense of humor and was also a prankster. He got such a kick out of calling companies to review their products or ask questions and having them send him coupons. Once he called me laughing so hard about his call to Uncle Ben’s Rice. He drove the poor girl crazy asking about the measurements, explaining that his mother in law had always cooked for him but now he was on his own. She asked him to hold on and he heard her say, “I don’t know if this guy is sorry that his mother-in-law died, but I sure am!”
He liked teasing my grandmother, sometimes by pretending to sneak into the kitchen to steal her freshly made matzah balls, to the point where she started counting them! To this day when I bake the cookies and hamentashen she taught me to make, I count the number of each shape and/or flavor!
He loved to laugh and to make people laugh. His facial expressions were priceless. His humor made stressful situations tolerable. I remember giving him books on Jewish humor and how he would call me to read some of the jokes, laughing so hard with his cutest laugh. He called me when he was watching our favorite comedies to recount a scene as he was watching it, and his laughter was so contagious that it always made laugh. Some of our favorite quotes came from Mel Brooks’ “The History of the World: Part 1,” “Tootsie,” “Guess Who’s Coming to Dinner” and “Hope and Glory.”
So hard to get him to pose seriously!
My dad loved history and military aviation. He knew so much about WW2. It was a challenge to find books about things he didn’t know, but he loved to read. I used to call him from Barnes and Noble and read the summaries of the new arrivals to see what he responded to. When there was someone or something that he didn’t know well, I knew I had a winner! Ben and I used to find documentaries for him and Ben would convert them to DVDs. He loved seeing footage he had never seen, and it wasn’t easy to find it!!! And we had many, many discussions about history.
As much as he loved gadgets, he had no patience. While he screamed about the bad instructions, I constructed tv stands and bookshelves. FIOS drove him crazy. I got many frantic phone calls when he could not get the tv to work. Ben and I downloaded manuals with the remote layouts so we could walk him through possible solutions. Ironically, he was a master at his trade in heating/air conditioning and was incredibly good at home repairs, helping neighbors and families with boilers, clearing floods, making heating/A/C decisions. Even from the hospice he gave me the perfect solution for dealing with the radiator and my freezing apartment.
He was like a father to Ben, who has ALS/Lou Gehrig’s disease, and was always looking for any gadget that would make his life easier. And they often do! I never had dinner with him where he didn’t order something for me to bring Ben, who cannot really get out very much at all any more. In the days when we did visit my dad, he would show Ben his gadgets, books and WW2 bullet casings and they would sit and talk about the wars. They both loved it.
I always knew how loved I was and I loved him. We used to speak maybe 5 or 7 times a day, sometimes to share what was on TV, or make each other laugh, or more recently, when he was living alone, I would remind him to eat and see how he felt every time I had a free period at school. Because I was a Spanish teacher he started watching Spanish television and he would call and ask me what words meant. I used to joke with my students that he worked harder than they did. But, it also intrigued them that my dad cared so much about what I did. And that was an important life lesson for many of them.
He was a man who was so devoted to his family. He always said that he just loved to hear my mom and I giggle with my grandmother. He was so proud to send my mom to meet me in England, even though both of us were amazed at her inability to work a luggage cart! He took care of my grandma, his mother-in-law, driving to and from work in Brooklyn to Woodmere to drive her to the beauty parlor, wait for her to be finished, drive her home, and then go back to work. He was honored and almost humbled that Uncle Larry called him every single Friday. He really missed Uncle Larry. There isn’t a friend or a child of a friend of mine that he did not ask and care about.
He was generous and was more comfortable giving than receiving help. He taught me by example to be kind, generous and compassionate and to have a sense of humor. I already miss the phone calls. But I am still talking to him.
I wore my camouflage pants today, along with a chain that he always wore. I miss and love you, Daddy. Semper Fi.
I used to love to cook for Ben and my dad. Since I lost them, I haven’t really had the desire to cook. It’s not fun to cook for myself. Also, I am not a great cook, but I am a very good recipe follower, and recipes tend to yield a lot of leftovers when I’m just cooking for myself. The abundant leftovers only remind me that I am alone.
I wrote about my first foray into cooking and how it reminded me of this scene from the original version of The Parent Trap (Walt Disney Productions 1961.) You can click here for the link to that post. Other than making an omelette for myself and simple microwave or stovetop things, I haven’t cooked. Today, I decided to make chili. I found a recipe, got all of the ingredients, and got to work. I was keenly aware that last time was very emotional, and it wasn’t long before I was heading toward the same place. As soon as the apartment filled with the smell of the onions and vegetables, I remembered how Ben loved when I would start cooking and he would smell onions and garlic. I decided to talk to him while I was cooking, which still had me in tears but also smiling. I did experiment a bit with the spices and it worked out well. I am proud to say that it was delicious. Ben and my dad would have been proud, which is important to me.
I do have a lot of leftovers, which does make me feel lonely. And, I had to do the dishes. Ben and I had always split the responsibilities- if I cooked, he did the dishes. It wasn’t as difficult as the first time I cooked, which is good. It was a food that I never made for Ben or my dad, and maybe that was helpful. I did expect and prepare myself for sadness, but I didn’t force sadness or keep myself from delving into the activity, open to enjoying it. While it wasn’t fun like it used to be, I coped by talking aloud to Ben. It’s a way that I co-exist with grief- looking back with sadness but also good memories, and continuing to take the baby steps forward with the knowledge that Ben and my dad are still with me.
Who wouldn’t be happy with a big hug from Mickey!?!?! July 2014
Today is National Hugging Day. Why not? There’s a National Day for everything!
Ben gave the best hugs. As his ALS progressed and his arms became weaker, he could no longer hug me. I remember, in particular, that he felt terrible that he could not hug me when I got the phone call that my dad had died. I remember being afraid to hug him tight, too, because everything felt so heavy to him. It’s strange that a day celebrating something joyful like hugging should trigger sadness, but that’s the thing about grief and loss. I miss Ben’s hugs.
Fortunately, there are so many good memories, too.This picture is one of my very favorites. The story is interesting and, I think, worth sharing.Ben and I were always so happy to meet Mickey and Minnie. As his ALS progressed, Ben still tried to walk to see Mickey. I knew that it was getting bad when he stopped trying to walk and just rode his electric wheelchair up to Mickey. I was always the one who got super excited to see my friends. In this photo, we had just entered the room and were greeted by Mickey. He actually spoke to us. I was just shocked and he reacted with surprise at my shock, so I started laughing.
What you cannot tell by looking at the pure happiness on my face is that this picture was taken on our last visit to Walt Disney World in July 2014. It was a truly wonderful visit, but stressful because Ben needed much more assistance (we brought a paid caregiver with us) and because we knew in our hearts that it would likely be our last visit. You can read more about that visit by clicking here. The Magic Kingdom is very accessible, but making sure that Ben had what he needed, that there were accessible bathrooms nearby and that Ben would be able to fully enjoy himself did come with stress. Getting to meet Mickey without any issue and with Ben feeling truly delighted gave me a feeling of success and relief. What you also don’t see in this picture is that I whispered in Mickey’s ear that we really needed some magic. Mickey just had to look at Ben in his electric wheelchair- unable to speak very clearly, very thin but with super swollen feet- to know there was a medical issue. Mickey held me tight and he patted my hand. He and Minnie gave Ben a lot of attention. It was emotional and it was beautiful. I needed that hug. I needed to believe that Mickey could help.
I believe the Disney magic did help. No, it didn’t cure Ben’s ALS, but, being at Walt Disney World brought Ben such happiness, it allowed him to feel free, and, as Ben described, he forgot his problems, which is saying quite a lot. We had four years after his diagnosis during which we were fortunate to enjoy several visits to Walt Disney World. I do call that pixie dust. So was the hug.
I feel it’s an important story to tell because we never know what’s going on in someone’s head or their story. I love that this photo captured a very vibrant smile before the tears that came with the emotion. That photo reminds me that a hug from Mickey Mouse came with all of the dreams, wishes and comfort that is Disney magic. That hug was compassion. We all need to show and to feel that. Mickey didn’t have to say anything, didn’t have to offer any advice or judgment- his hug was the compassion that we needed.
This is another favorite picture of mine- Ben loved Sully, and when Sully saw Ben in the electric wheelchair, he ran over to him and offered to help him up. Sully gave Ben the biggest hug, which made Ben so happy. You can just see his inner child shining in this photo. It absolutely delights me to have these memories.
I send everyone a big hug of compassion on this National Hugging Day!
I never thought of myself as a brave person, though as I’ve reflected on my experiences in caregiving, I have often turned to what Christopher Robin told Pooh: You are braver than you believe, stronger than you seem and smarter than you think. I have reshaped my life as I have looked towards the future, and I have forged those steps, small and slowly paced as they may be. At the same time, I have wondered about my destiny. There are things that I would like to do, but there are things that have not come together. This has led me to question my direction, success, and how I define my life.
After several years of caring for my dad and for my husband, Ben, losing them also meant losing a large part of my identity as a caregiver. I was not only grieving their loss, but also grieving what had revealed itself to be a significant part of myself. I was surprised to realize that I missed being a caregiver. Although it was challenging and fraught with tensions and sadness, it was the most meaningful and loving work I had ever done. While I floundered about what to do with myself without the role of caregiver, I came to embrace that caring for people is who I am, whether as a caregiver or a teacher. I channeled Merida and determined that this was my destiny- the purpose of my life- and I had to look inside myself and see that in a positive way. I pursued my certification as a caregiving consultant, though I was never exactly sure how I would or if I would professionally put that skill to use. As a teacher and a person who loves to be around children, although Ben and I had no children together, I often thought about children who were watching a parent with ALS or any other terminal disease. I volunteered with my local ALS chapter to conduct an event for children with a parent with ALS. We did crafts projects, they had pizza and ice cream, and everyone had a chance to talk. I was invited to speak with a group of ALS caregivers to share my experience, try to answer their questions and offer encouragement. I wanted to do more events, and still hope that will happen, but the organization focuses on other important services.
I discovered another wonderful organization called Hope Loves Company. This organization offers programs- particularly weekend camps- for families affected by ALS. I volunteered to do scrapbooking workshops with children at two of these camps, and those have been fun and rewarding. It’s both heartwarming and heartbreaking to look at the photographs that the children put into their scrapbook and to hear their memories and experiences. These camps offer a unique and invaluable opportunity for children who have ALS in common to be with others who understand their situations without explanation. Since many return to camps, the bonds established among children and adults are strong. I feel grateful to be a tiny part of that. I hope and plan to continue to volunteer with Hope Loves Company, though the camp locations are a bit of an obstacle.
I tried to convince myself that I was embracing my destiny, yet I was not feeling the sense of fulfillment I would have expected. Maybe teaching and caregiving are simply well aligned to my personality. Teaching is my current career, and it is rewarding, but there has always been a tug within me to do more. I feel positive about my blog and the feedback that it brings joy, comfort and guidance to readers, but have been feeling frustrated and stressed that I need to expand it without knowing exactly which way to go. The volunteer opportunities to reach children who are caregivers have felt like a genuine movement towards my destiny. I have struggled to find a perfect fit, though my background in arts, education and teaching clearly lend themselves to working with this audience. I have toyed with the idea of starting a meetup group for children who are caregivers, but the obstacles leave me somehow stymied. I continue to brainstorm with myself and others about ways to reach children who are caregivers. I have frustrated myself that I can’t seem to get where I want to go, and that has left me wondering- or even worrying- that I don’t know my life’s destiny. I skeptically wonder if the whole idea of a destiny is just a Disney kind of ideal, yet I thrive on Disney dreams and wishes. I have not been able to let go of the idea that there is more that I am meant to do, but I have felt lost, and without confidence, about how to move forward. I have questioned if I have the ability to move beyond dreams and creative ideas.
Last summer, as I was doing some planning before the school year, I thought about my population of students. Over the years, I have seen that many students are caregivers, either for their younger siblings or for a parent or other close relative who is ill. These are the students who sometimes attend class and fall asleep or cry with their heads down. Or, they may be the students who act out with negative behaviors. Their grades sometimes suffer and academics keep moving down their list of priorities. These were the students whose attention I got when I mentioned taking care of my dad or Ben. They were students who loved the opportunity to do an art project and express themselves. I was someone whom they knew understood their experience. It occurred to me that while I was searching for ways to help children, I had children right in front of me who needed guidance and compassion.
I spoke to my principal about reaching out to kids who are caregivers, and at his suggestion and encouragement, formed a club designed for kids to participate in crafts and activities that let them care for themselves and for others. I talked to the guidance counselors and some teachers about my club so that they could suggest it to students who might benefit. The club has brought together kids who want to make friends, who may be a little shy, and are also interested in volunteer opportunities so they can help others. We have been doing crafts activities and exploring volunteer opportunities. Unfortunately, an after-school program is not always feasible when a student has caregiving experience. I remember running home as soon as school was over to take care of Ben and calling my dad on my way home to check on him, too. The club was a start, and that was good, but I kept focusing on what I was NOT doing and that I was not exactly fulfilling what I had determined was my destiny. I need to learn to work on that in myself.
After the Australian wildfires, students came to school very upset about the suffering animals. I am an animal lover and was also devastated. I approached my club members about doing a school fundraiser on behalf of he animals. It was short notice, but there was a school play coming up in just under two weeks, and I thought it was a perfect opportunity to engage students and their families. I was delighted to see the kids come together with such enthusiasm, along with other former and current students, to support the idea. Colleagues also joined our effort. The kids helped in many ways- brainstorming how to market the idea, designing social media posts, baking, and working at our booth after school for the two days of our school play. So far, in just two days, we have raised more than $300 for the Australia Zoo’s Wildlife Warriors program. We will continue this effort for a few more weeks. The kids feel a tremendous sense of satisfaction, which will hopefully motivate them in the future.
It thrills me to see the students feel positive and successful. It makes me happy to see them socializing and making new friends. They want to help others. They have shared some of their personal stories about issues that have affected their own loved ones and we are seeking ways to volunteer to support those issues. In fact, the students even said that they would participate in an ALS walk to support me, which touches my heart. Though, at this time, children who are actually caregivers are not members of our club, the members are kids who are caring and compassionate and are using those skills in positive ways. They are, in fact, a group of children who are givers of caring!
I think that as we navigate grief, particularly after spending a lot of time as a caregiver, we flounder with where we belong. I have met so many former caregivers who cannot get far enough away from that experience. I understand and don’t judge that or any other response. But, if we delve into anything, even if it is a return to work and not a change in direction, it is so easy to become shaken. And, changes in routine and structure often lead to floundering. I knew that I wanted caregiving and volunteer work to be a part of my life without really knowing what that meant. For me, there is always the fear that trying different ideas will lead to failure, and that the failure will mean that I was on a wrong or unachievable track. Participation as a volunteer has given me insight to what I can do, but also raised obstacles that made me question myself. I began to feel that spent a long time seeking to fulfill a desire to help caregivers, never feeling that I was grasping this vague idea I had of destiny. I was been pleased with my accomplishments, but I also questioned my goals, my strategies and what I thought was my fate.
Merida was right- I had to be brave and open to look within myself and see not only what I perceive as the failures, which hold me back, but also the positive things that, actually, have been leading me forward. I am discovering that it’s the concept of fulfilling my destiny that needs to shift. There is no finish line, no check-off list to that end. My destiny is within me and can be seen in the evolution of activities along an ever-changing trajectory that lets me know that I have touched lives in a meaningful way. I have had to stop searching for this unattainable destiny and let myself be brave enough to look within and know that regardless of the activity and its success or failure, I feel most invigorated, rewarded and purposeful when I am working with and for caregiving and promoting caring. For the first time, I am beginning to embrace the destiny that I’m already living, optimistic and open to bravely recognizing and tackling new opportunities.
Making a statement that “Fashion Cares About Australia”- raising money for the animals in Australia with baked goods and wristbands.
Fabulous poster made by a wonderful art teacher at school!
My contribution of cookies- grandma would be thrilled!